A Sensitive Question

Question:

>What does this mean?  It sounds to me like only 4% of psoriatics >are the only ones in their families with psoriasis.  Rare enough?  I >prefer to think of us as "elite loners."  :)

So I’m a rarity? I don’t mind being an "Elite Loner." Nice way to put it Dave! Sounds kind of important! LOL! Best Regards, Jo

Response:

Well, what if you decide not to have children, and then 20 years down the road when you are too old to have children they find a cure!!!! – Hide quoted text — Show quoted text -> I have a 22-year old friend whose father has P, and she also has P.  Now > she’s wondering if she should even think about getting married and having > kids.  She believes her parents should have considered that same question > before having her — because she lives with the same skin misery many others > of us do. > So here’s my question:  I’m not absolutely certain that psoriasis has been > proven to be hereditary, but if it is, do you think that people with > psoriasis should go ahead and have children? > In other words, based on your personal experiences, would you risk passing > on the disease/condition to your kids? > JohnnyM

Response:

As a person with rather severe PS and PA, I do understand the question (or the thought behind the question.) I have two wonderful daughters and without them, my life would be over by now, probably ended by me on one of my terrible PA days. Of course I don’t regret having them, but I do live in abject terror of them getting this. Believe me, terror is not too strong a word, considering the pain. Not the look of it, not the inconvenience of it and not even the debilitating nature of it, but the thought of my "babies" being in pain like I am is horrifying to me. Would I choose not to have them if I knew then what I know now? I can’t answer that question. I really can’t. My selfish self says "Of course you would! But if I knew for sure (and therein lies the question) that they would get it, then my altruistic self would say "No. I would not knowingly let them suffer as I have just so I could have the pure joy of them in my life." I guess its just that I can take anything that life throws my way, and always have, but I don’t ever want them to have to deal with pain or suffering of any kind. What parent does? Much too heavy a response I suppose, especially since I didn’t really answer the question, but this subject led me to be very philosophical and melancholy. I am normally very upbeat and positive and optimistic!

Response:

>They survived many years. >(at least I don’t think P can killya!)

Actually, although it is rare, Ps can occasionally kill.  If I remember the figures from the National Psoriasis Foundation, I believe about 400 people per year die of severe psoriasis.   I have communicated with some people who might be in this class, with extremely severe disease covering more than 90% of their body and making it very difficult to move, to regulate body temperature, to regulate bodily fluids, anything.  It makes me thankful my disease is not that severe or disabling. Best regards,

Response:

My mum tells me that she knows of no one in the family that has P, but I have it and my children have it. Jell.

– Hide quoted text — Show quoted text -> Interesting thought > my family have P but it skip’s generations therefore my children if and > when I have them won’t get P "Less likely too " > as about 5% of the population get P and of that 5% say 50% get very bad P > then it’s a little hard to blame somebody’s parents for having you. > There are so many other things that a child may get other than P , I feel > that not having children because of a small risk is a bit extreme. God > forbid they where disabled in any other way. > By the way I suffer from bad P and this is the first time I’ve visited this > NG . So far very interesting. > Martin > I have a 22-year old friend whose father has P, and she also has P.  Now > she’s wondering if she should even think about getting married and having > kids.  She believes her parents should have considered that same question > before having her — because she lives with the same skin misery many > others > of us do. > So here’s my question:  I’m not absolutely certain that psoriasis has > been > proven to be hereditary, but if it is, do you think that people with > psoriasis should go ahead and have children? > In other words, based on your personal experiences, would you risk > passing > on the disease/condition to your kids? > JohnnyM

Response:

Check to see if your relatives cousins uncles aunts have or had it ? Have you got Psoriasis or is it a skin condition with similar markings? Why do we assume Psoriasis is genetic? I once suffered from Asthma but no one in my immediate or relative family had it.The medics say thats genetic. I have had people suggesting that in some cases where parents have taken certain medication to cure illness this could have sparked an allergy towards Asthma. This could be quite possible with Psoriasis.. Happy Living… Geoff

– Hide quoted text — Show quoted text -> Noone in my family has/had psoriasis either….Is this rare? How many of you > have it in your family? >Nobody in my family history has psoriasis….. I am the only one.. How >in the world did this happen?

Response:

>Why do we assume Psoriasis is genetic?

We don’t assume.  There’s been quite a bit of research into the subject.  Take a look at my other post on this. > I once suffered from Asthma but no one in my immediate or relative > family had it.The medics say thats genetic.

Basic genetics teaches us that spontaneous mutations happen all the time.  Could be the reason for your asthma and our one-person-in-the-family-with-psoriasis stuff.  I doubt it happens quite so *often*, but it could explain a few cases. – Dave W.

Response:

>By the way I suffer from bad P and this is the first time I’ve visited this >NG . So far very interesting.

It can only become more so with all these new people coming out of the bushes! Welcome to the group, Martin.  Now keep on posting. Best regards,

Response:

P  dates way back in my  family all the way back to my great grand mother. I have it.My mother has it my step brother,my sister  and my grand mother  and lastly my 16 y/o niece.I have it the worst out of everyone..Jerry http://home.talkcity.com/BasinSt/crawfish444/ Jerry Strahan Springhill,La. Private Investigator-Student here on the Bayou.Laissez les bons temps rouler dans louisiane ! I am in black t-shirt in the picture   "L

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