Zinc Cream.
Question:
If you don<t have any blood pressure or cholesterol problems, try the Neoral. It works wonders. – Hide quoted text — Show quoted text ->Sorry Folks. I guess I should have told you more of what I have tried. > … > (most common topicals) > … >My legs and backs and elbows are the worst. I am ashamed and very >depressed. My husband, who does understand and tries to help, is >really turned off by it now. It’s sickening to look at. I am one big >red raw scaly mess. I hate myself too. > Maybe you’re ready for the big guns then, either the older Neoral or > the newer Enbrel. > Or, join me in the waiting room for Amevive, supposed to become > available early next year. At least tell your husband that these are > available, and if all else fails, you will look into them soon enough, > for him, and for yourself. > Meanwhile, have you tried the nutritional approaches? Tons of > discussions about this in the archives, different things seem to help > different people. For me, I seem to be able to reduce the scaling > tremendously, but not the redness. I can reduce the scratch-n-bleed > by 99%, too, which is a tremendous relief (that allows me to wait a > few more months for my state-of-the-art-treatment-of-choice). > My dietary (and other) tricks: reduce red meat, reduce complex carbs, > eat a few eggs a week (best are the DHA-fed ones), take a few 500mg > primrose oil capsules/week, eat some coconut (Mounds bar or unsweeted > stuff or even fresh!) once a week or so, use the tanning salon > sparingly and get natural sun (in moderation) when possible, take a > shower in the AM and a hot salt bath in the PM. > For good luck, I’m also using milk thistle (actually a "for your > liver" blend from Trader Joes with dandelion and turmeric), Q10, > occassional B-12 plus FA (if you go low on red meat both the B12 and > the Q10 are a good idea … a REALLY good idea if you happen to be on > cholesterol medicines, btw), and grape seed extract, tho that may have > some negative side effects. > I’ve also been having some luck recently with the "fatty cold-water" > fish business, specifically in my case pickled herring. Lot of jokes > available here … but I’ve tried the equivalent fish-oil omega-3 > capsules, and they did NOT help me. > Keep your weight down, generally. It’s entirely possible that > limiting your calories long-term, getting your weight below average, > would help quite a bit, but hey, how many of us have tried that? 
> And last but not least, moisterize like you MEAN it! > Hope that helps. > But remember, there are some of these (expensive) high-tech treatments > available today, a number more than I’ve mentioned here and yet more > coming down the pipeline over the next year or two. > J.
Response:
I was just wondering if anyone has tried this? My husband and I saw an advertisement in today’s paper, and we broke down and ordered it. Says it is not a cure, but will help the skin. More for eczema or something. Did I just waste $155.00? I have had P. for 3 years now. It is getting worse and worse. Terrible on my elbows, and the big spots on my legs burn and itch all the time. My back is about 40% covered. I have tried every steroid cream out there. Nothing works long term for me. Help. Please. Track
Response:
>I was just wondering if anyone has tried this? My husband and I saw an >advertisement in today’s paper, and we broke down and ordered it. Says >it is not a cure, but will help the skin. More for eczema or something. >Did I just waste $155.00? >I have had P. for 3 years now. It is getting worse and worse. Terrible >on my elbows, and the big spots on my legs burn and itch all the time. >My back is about 40% covered. I have tried every steroid cream out >there. Nothing works long term for me. Help. Please. Track
I hope you’ve also seen a dermatologist about this. There are lots of things to try, old and new, topical and systemic. The zinc thing, … well, not a lot of people report huge improvements from the zinc alone, but now and then, someone does. With a prescription you can get them to mix in steroids (or I suppose you could mix in whatever you have at home, tho that probably won’t work quite as well). The *mixture* seems to get a few more positive reports. And then there was Skin Cap, which was basically that, except that it seemed to work a lot better than any of the generic clones, which suggests it had some other magic ingredient in it, but we’ll probably never know for sure. Hope that helps, J.
Response:
>I was just wondering if anyone has tried this? My husband and I saw an >advertisement in today’s paper, and we broke down and ordered it. Says >it is not a cure, but will help the skin. More for eczema or something. >Did I just waste $155.00? >I have had P. for 3 years now. It is getting worse and worse. Terrible >on my elbows, and the big spots on my legs burn and itch all the time. >My back is about 40% covered. I have tried every steroid cream out >there. Nothing works long term for me. Help. Please. Track
Few things – next time you might want to check the newsgroup archives for prior discussion about something like this before blowing that much money on it. There are easily used links to search the archives at http://www.pinch.com/skin The ads are intentionally misleading. Zinc Py is NOT FDA approved to treat P (FDA approved is not the same as FDA approved to treat P although you’re supposed to assume it is) and it’s tough to find any really reliable reports of it doing so (vs shills trying to sell it via fake recommendations or people really using it for other things). As you point out, it really is more for eczemza or even seb derm. Now, the big thing – you say you’ve tried every steroid cream out there but don’t mention trying anything else. There are LOTS of things other than steroids that people here have found really can/do help psoriasis (although nothing works for everyone). Are you looking for suggestions? Let us know what you have already done (just steroids? any alternative methods? does it get better in the sun? etc) , and you can get a lot of other ideas from helpful people here in the group on things that have helped them and that they aren’t looking to take your money for. Kim The Psoriasis Newsgroup Resource FAQ can be found at http://www.psoriasisfaq.com but will also be coming soon (twice a month) to a newsgroup near you…
Response:
Sorry Folks. I guess I should have told you more of what I have tried. I have been on all the steriod creams. the strongest and best being Ultivate, and Temovate. I have an ongoing prescription with Elocon. It doesn’t do much of anything. It helps my face some. I have seen at least 3 derms and of course 4-5 regular doctors. Everyone of them tells me there is no cure. They all give me a cream of some sort and send me home. I have done the Dovonex by itself and mixed it with Temovate the other times. Tazorac seems to make the scales worse. I did the tanning booth thing. It did clear up my back some. But it is so hard to go to with a full time job. And I got sick off of a tanning bed one time. They don’t really clean behind the other people They are not sterile. I have watched this. In other words I have tried everything and spent a lot on money on a lot of things. Even coal tar. I have P on my head and really bad on my ears. I have been reading in the group and other sites on P since I’ve had it. Mine is getting worse. I don’t mind spending ANY amount of money to clear this up. My legs and backs and elbows are the worst. I am ashamed and very depressed. My husband, who does understand and tries to help, is really turned off by it now. It’s sickening to look at. I am one big red raw scaly mess. I hate myself too.
Response:
>Sorry Folks. I guess I should have told you more of what I have tried.
… (most common topicals) … >My legs and backs and elbows are the worst. I am ashamed and very >depressed. My husband, who does understand and tries to help, is >really turned off by it now. It’s sickening to look at. I am one big >red raw scaly mess. I hate myself too.
Maybe you’re ready for the big guns then, either the older Neoral or the newer Enbrel. Or, join me in the waiting room for Amevive, supposed to become available early next year. At least tell your husband that these are available, and if all else fails, you will look into them soon enough, for him, and for yourself. Meanwhile, have you tried the nutritional approaches? Tons of discussions about this in the archives, different things seem to help different people. For me, I seem to be able to reduce the scaling tremendously, but not the redness. I can reduce the scratch-n-bleed by 99%, too, which is a tremendous relief (that allows me to wait a few more months for my state-of-the-art-treatment-of-choice). My dietary (and other) tricks: reduce red meat, reduce complex carbs, eat a few eggs a week (best are the DHA-fed ones), take a few 500mg primrose oil capsules/week, eat some coconut (Mounds bar or unsweeted stuff or even fresh!) once a week or so, use the tanning salon sparingly and get natural sun (in moderation) when possible, take a shower in the AM and a hot salt bath in the PM. For good luck, I’m also using milk thistle (actually a "for your liver" blend from Trader Joes with dandelion and turmeric), Q10, occassional B-12 plus FA (if you go low on red meat both the B12 and the Q10 are a good idea … a REALLY good idea if you happen to be on cholesterol medicines, btw), and grape seed extract, tho that may have some negative side effects. I’ve also been having some luck recently with the "fatty cold-water" fish business, specifically in my case pickled herring. Lot of jokes available here … but I’ve tried the equivalent fish-oil omega-3 capsules, and they did NOT help me. Keep your weight down, generally. It’s entirely possible that limiting your calories long-term, getting your weight below average, would help quite a bit, but hey, how many of us have tried that? And last but not least, moisterize like you MEAN it! Hope that helps. But remember, there are some of these (expensive) high-tech treatments available today, a number more than I’ve mentioned here and yet more coming down the pipeline over the next year or two. J.
Response:
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