Ultravate
Question:
>Ah, that’s two people in the last 12 hours who mention being on Ultravate >and finding that it fades away in potency or effect over time. It suddenly >occurred to me that the friendly crew here have moved away somewhat from >the ‘proletariat’ if you will: there are people out there, reading this >group, who quite naturally don’t know that when the old hands here talk >about ’steroids’ they are talking about Ultravate/Betnovate and almost >anything else whose name ends in -vate. So, from the top:
Very good point. And the correllary -when other people post including references to unspecified creams, it would help everyone if they’d be a bit more specific about what those creams are. Not all ‘creams’ for P are steroids, work the same or have the same risks/side effects. >- it looks like every P treatment will slowly diminish in potency. This >isn’t because they don’t make drugs like they usedta: it’s because the >skin acclimatises. This applies to tar, UV, Ultravate, Anthralin, Dovonex, >and peruvian virgin Llama ovaries (damned hard to find these days in the >Greater London area, let me tell you!)
Yeah, although I wouldn’t generalize with saying slowly -rate varies by individual and treatment. For example, one of the problems with steroids is that they are notorious for a relatively rapid decreased effectiveness compared to other treatments, although not everyone experiences it. And for some -self included, it’s far more rapid than even that norm so that I get rebound while I’m still using them. Which is why I don’t use them. Also wouldn’t say ‘will diminish’ as if its a guarantee for all -it’s probably true given enough time and use, but it’s a function of type of treatment, actual usage, and individual. And for many that’s never a factor. Again, one must always remember that those who are concerned enough to spend time in the ng are almost by definition those with the worst problems with their P. <snip very good stuff> >- VERY few doctors like the idea of combination therapies: go to a doc and >say "a tube of Dovonex, another one of Anthralin, and an oil-drum of E45 >bath oil please" and they will immediately say "you’ve been listening to >that unqualified goof Cassidy, haven’t you". Nonetheless, it looks like >there’s some mileage in going all mixed-up with various forms of >treatment.
Umm, this may be a function of type of doctor and geography. Certainly any P specializing derm (which is the key) I’ve seen here in the states has been a proponent of this sort of approach and even more so of the equally important rotation of therapies. With one of the biggest reasons for both being to delay reduced effectiveness and other side effects by reducing reliance on any one treatment. Good post Kim The Psoriasis Newsgroup Resource FAQ can be found at http://www.mindspring.com/~kimmalo/PFAQ.htm but will also be coming soon (twice a month) to a newsgroup near you…
Response:
Ah, that’s two people in the last 12 hours who mention being on Ultravate and finding that it fades away in potency or effect over time. It suddenly occurred to me that the friendly crew here have moved away somewhat from the ‘proletariat’ if you will: there are people out there, reading this group, who quite naturally don’t know that when the old hands here talk about ’steroids’ they are talking about Ultravate/Betnovate and almost anything else whose name ends in -vate. So, from the top: – it looks like every P treatment will slowly diminish in potency. This isn’t because they don’t make drugs like they usedta: it’s because the skin acclimatises. This applies to tar, UV, Ultravate, Anthralin, Dovonex, and peruvian virgin Llama ovaries (damned hard to find these days in the Greater London area, let me tell you!) – Steroids are basically 60’s medical tech, from the ‘let’s try this, and sod the long term side-effects’ school of medicine. As such they are probably ‘better’ than tar (was it Ed A who said there’s 4,000 active compounds in tar and they don’t yet know which one slows down P?), but only when the proper instructions are followed: and those proper instructions say things like ‘a WEEK on, a WEEK off’ or some similar stop/start or short-exposure regimen. slapping on the steroid goop for years is not recommended. – Many general practitioners and even dermatologists will keep on churning out the -vates when they shouldn’t. When you find one that does this, make your excuses and leave for someone who can at least be bothered to keep up to date. – VERY few doctors like the idea of combination therapies: go to a doc and say "a tube of Dovonex, another one of Anthralin, and an oil-drum of E45 bath oil please" and they will immediately say "you’ve been listening to that unqualified goof Cassidy, haven’t you". Nonetheless, it looks like there’s some mileage in going all mixed-up with various forms of treatment.
Response:
There is a page at the NPF web site that lists a growing number of psoriasis research programs (9 – soon to be 10 in 18 cities in 12 different states) that are seeking patient volunteers. The URL is: http://www.psoriasis.org/volunteer.shtml Ed
Response:
Anyone know if there’s anywhere where I could be aguinea pig for new psoriasis treatments? John
Response:
>Anyone know if there’s anywhere where I could be aguinea pig for new psoriasis >treatments? >John
Try a can of SkinCap. — Gary Cleghorn Mmmmmm… donuts whoo-hoo
Response:
Check out the National Psoriasis Foundation page, which lists current experiments & locations, or it did the last time I checked. http://www.npf.org Good luck. writes: – Hide quoted text — Show quoted text ->Anyone know if there’s anywhere where I could be aguinea pig for new psoriasis >treatments? >John
Response:
>Anyone know if there’s anywhere where I could be a guinea pig for >new psoriasis treatments? Dr. Lowe in west Los Angeles is associated with a group that does mostly clinical trials of new treatments, I think. I considered volunteering, but thought better of it. J.
Response:
>Check out the National Psoriasis Foundation page, which lists current >experiments & locations, or it did the last time I checked. >http://www.npf.org >Good luck.
They might have better luck at http://www.psoriasis.org
Response:
I have been using it for a few years and have never tried dovonex or anything else– I have been to tanning beds but this only stops it for a few days then it comes back–anyone got any suggestions? I usually just wait till the summer for the sun–but this winter has been long–LOL. My P is only small dots but they have gotten to by mildly consistent on my trunk and legs–If you have any ideas tell me–Peace to ya! brian
Response:
Related Posts