psoriatic arthritis
Question:
Howdy All, Besides chronic and intractable 3 day long migraines, I get huge blotches of areas that look like an uncooked corn tortilla shell. I finely went to a dermo-guy and he said its sporiatic arthritis. "How painful is it." Its not painful on the spots other than itchy, but a painful whole body fatigue has come along and got worse as the things grew. Its painful and makes all my larger bones and muscles ache then feel like I’ve been sitting wrong and they went to sleep. And as they wake up (say my legs and feet) I feel numbness unless touched then its extremely painful to the touch on my skin. I know its just not goning to sleep on me because its usually starts from a little fatigue like gripping something tightly for 10-15 seconds then releaseing-then its starts. Any one else and what helps? email Dale at thanks Before you buy.
Response:
have been dealing with PA for years and who could tell you a lot (Lady Andy, Steve, Dan, etc.). If you’ll post your Q there I’m sure you’ll hear from some of them. Good luck! Cush http://pages.prodigy.net/cushman4/badback.htm . . .Bad Backs (166 links) http://www.iso-trac.com . . . Fixing bad lower backs with traction http://pages.prodigy.net/cushman4/index.htm . . . Fixing OA with G/CS >Besides chronic and intractable 3 day long migraines, I get huge >blotches of areas that look like an uncooked corn tortilla shell. I >finely went to a dermo-guy and he said its sporiatic
arthritis.
Response:
My athritis was throught my whole body. The doctor here (U.S.) suggested the only treatment was chemotherapy with methotrexate. On a trip to Equador, I met a doctor of natural medicine. I went on a "cleansing diet" consisting of fruit only for one week. I then went totally "vegan." I now have no athritis. I was told that this would not work but, I am not taking ibuprofen or anything for pain! Oh yeah, before I started my cleansing diet — I drank a cup of olive oil late the night before. I had about three days of diarrhea. It has been about a year now, and I am doing fine. I still have the psoriasis. I want to return to Equador to find out what other natural treatments that exist. I have more faith in them these days. I think that the doctors just want more and more money and patients.
Response:
Hi, I also have PA and I wanted to ask you if you think yhat sulphasalazines helps you. I have PA for 7 years and on the begining i felt that it helps me but now I’m not sure. About the fish oils you told about, It’s similas to Lyprinol ? Thank you, Leonardo.
Response:
> Hi, > I also have PA and I wanted to ask you if you think yhat > sulphasalazines helps you. > I have PA for 7 years and on the begining i felt that it helps me but > now I’m not sure. > About the fish oils you told about, It’s similar to Lyprinol ? > Thank you, > Leonardo.
Hi, Leonardo! Since nobody replied, I’ll try 
No, the fish oils are not Lyprinol. The fish oils are Omega-3 fatty acids which can be taken in a food supplement or through fat fish as e.g. tuna or salmon. — Best regards, Visit my home page at: Med vennlig hilsen, <URL:http://home.newmedia.no/flaker/> Aase Marit ))))) ("Aw-se-Mareet")
Response:
> > Hi, > How are the mental effects of psoriatic arthritis effecting you? I’ve > had psoriasis since I was 17. The arthritis started about a year > later. I’m 23 now and the psoriasis is in remission, but the > arthritis is in full swing. I notice the changes in the weather the > most. That’s when it hurts the most. My skin is now fine, a little > dry every once in a while, but no more leasions. The arthrisis is > giving me lots of pain though. Any suggestions? It bothers me > (mentally) that I’m 23 and I have arthritis. At least my grandfather > and I always have something to talk about. "Which joint hurts today?" > Again, any suggestions? > Dave
Hi Dave, I know how you feel. I am 20 years old and have had P for about 7 years and PA in my left ankle for almost as long. Just found out that it was PA, atually, after so many years. I can handle the ankle thing but now, it is spreading. The Psoriasis is going away for the first time since I have had it but it seems that the arthritis is just getting worse. *sigh* Lesser of two evils? I don’t know. And it bothers me that I am so young and am afflicted with this too. I am on some mild medication for it (Motrin) but they have told me it will only get worse. Great. I wonder if there are any preventory medicine or something? Hehe.. Right. And pigs fly. Anwyay, I know this does not help you with your question but I just thought I’d let you know that you are not alone. Anne
Response:
>Hi everyone: >I may not break news to you, since I read the newsgroup only occasional, >but something worked for me. Please disregard, if this is old news. >It is called ‘Joint Fuel’ and you get it at GMC. It is not really cheap
WARNING!!! Many nutritional supplement sold in places like GNC and health food stores are DANGEROUS. They can have serious even life threating side-effects. DON’T BE FOOLED INTO BELIVEING BECAUSE THEY ARE "FOOD SUPLEMENTS", "NATURAL", HERBS, ETC THAT THEY ARE SAFE! Many are NOT!! Bill >but it is a nutritional supplement (not a strong drug like MTX) and it >helps. You take three pills in the morning and three in the evening for >two or three weeks, then the relief kicks in. I do that for a while, then >I am off for months – why go on if not necessary? When it gets worse, I >start again. The smalles pill container costs about $26.00. >As with SC, I do not know how safe it is. I saw an article on the >’inventor’ in the PEOPLE magazine – and I got laughed at for telling a >pharmacist about that. But I take all the laughter in the world, if it >helps. >Any comments? >Regards, >Wolfgang G. Propfe >(Psoriasis and P.A. sufferer)
US Code Title 47, Sec.227(a)(2)(B),a computer/modem/printer meets the definition of a telephone fax machine. By Sec.227(b)(1)(C), it is unlawful to send any unsolicited advertisement to such equipment. By Sec.227(b)(3)(C), a violation of the aforementioned Section is punishable by action to recover actual monetary loss, or $1500, whichever is greater, for each violation. E-mailing me indicates acceptance of these terms.
Response:
Hi, I also have PA and I wanted to ask you if you think yhat sulphasalazines helps you. I have PA for 7 years and on the begining i felt that it helps me but now I’m not sure. About the fish oils you told about, It’s similar to Lyprinol ? Thank you, Leonardo.
Response:
Ask your doctor about fish oils – they have really helped me and yes, there are clinical studies to back them up. Search medline under fish oil and arthritis. I stay away from natural medicine "cures", but my rheumatologist prescribed fish oil and it has really helped my PA (But I am also on nsaids and sulphasalazine) but off methotrexate!!
Response:
Hi everyone: I may not break news to you, since I read the newsgroup only occasional, but something worked for me. Please disregard, if this is old news. It is called ‘Joint Fuel’ and you get it at GMC. It is not really cheap, but it is a nutritional supplement (not a strong drug like MTX) and it helps. You take three pills in the morning and three in the evening for two or three weeks, then the relief kicks in. I do that for a while, then I am off for months – why go on if not necessary? When it gets worse, I start again. The smalles pill container costs about $26.00. As with SC, I do not know how safe it is. I saw an article on the ‘inventor’ in the PEOPLE magazine – and I got laughed at for telling a pharmacist about that. But I take all the laughter in the world, if it helps. Any comments? Regards, Wolfgang G. Propfe (Psoriasis and P.A. sufferer)
Response:
Hi, How are the mental effects of psoriatic arthritis effecting you? I’ve had psoriasis since I was 17. The arthritis started about a year later. I’m 23 now and the psoriasis is in remission, but the arthritis is in full swing. I notice the changes in the weather the most. That’s when it hurts the most. My skin is now fine, a little dry every once in a while, but no more leasions. The arthrisis is giving me lots of pain though. Any suggestions? It bothers me (mentally) that I’m 23 and I have arthritis. At least my grandfather and I always have something to talk about. "Which joint hurts today?" Again, any suggestions? Dave
Response:
> Hi, > How are the mental effects of psoriatic arthritis effecting you? I’ve > had psoriasis since I was 17. The arthritis started about a year > later. I’m 23 now and the psoriasis is in remission, but the > arthritis is in full swing. I notice the changes in the weather the > most. That’s when it hurts the most. My skin is now fine, a little > dry every once in a while, but no more leasions. The arthrisis is > giving me lots of pain though. Any suggestions? It bothers me > (mentally) that I’m 23 and I have arthritis. At least my grandfather > and I always have something to talk about. "Which joint hurts today?" > Again, any suggestions? > Dave
Hi, Dave! I also have PA, got it when I was 14 (now 32). In short: – Adequate medication and follow-up by a good rheumatologist. – Occupational Therapy (work and home adaptations, assistive devices, joint protection). – Physical Therapy (exercise and different types of treatment, individual stuff… Hot water pool exercise and low impact studio exercises works for me). – Relaxation techniques etc. can be useful for some in order to cope with the pain and stress the arthritis causes. Why don’t you go to my homepage? URL below. There’s a short article there about PA and a lot of links to useful resources. Also, I recommend the newsgroup alt.support.arthritis where you’ll find a lot of fellow PA’ers and people with other types of arthritis, young and old and in between . Take care!!! — Best regards, Visit my home page at: Med vennlig hilsen, <URL:http://home.newmedia.no/flaker/> Aase Marit ))))) ("Aw-se-Mareet")
Response:
> >I posted clearly says, there were 25 cases of punctured lungs by >1135 physicians in the first study, compared to 8 cases of punctured >lungs by 197 acupuncturists in the *parallel* study. 2.2% for the >doctors, 4% for the acupuncturists. As far as adverse effects go in >total, the doctors rated 17.8% (neatly almost matching your 20% figure), >while the acupuncturists rated 107%. > When you reduce a sample from 1135 to 197 you may actually compound the > error by a factor of 6, so with normalization the effective rate for > acupuncture would be .6% instead of 4%, which again is way below the > rate of doctors, 2.2%. The 107% figure you mentioned for acupuncture > could have come down to 17.8%, which tells us that the reports on > adverse effects are within the norm.
Ah… the new math. It’s a marvel. Just for your future reference, you can’t do this with the numbers. They just don’t bend this way. >The orange in your comparison is the Japanese study, done at a medical >center, where apparently the acupuncturists all had medical training >along with the traditional training. > If you considered oriental medicine as an equivalent training to > traditional medicine, maybe you are right, but I believed they diverge > in some certain fundamental concepts. I think the flaw in the study was > they should have focus on the length of experiences rather than the > type of training a particular acupuncturist has.
So, let me see if I get this. I have no formal training but I play a doctor on TV… no that’s not it. Lets see, I’m the pretender and I can convince you that I’m an eminently qualified doctor… no that won’t work either. Oh, now I get it. I have no training, or perhaps just a little, but I’ve gotten away with practicing acupuncture for a long time and that makes me qualified. > As with any > profession, you seek someone with a long history of successful > practice, rather than someone who is smart and stack with paper, and > oftentimes useless, credentials.
Personally, I like a doctor that has actually graduated from med. school. I’ve even found that their residency program can be quite helpful to them. But that’s just me. > As I have mentioned earlier, medical > doctors with certificate in acupuncture do not equate quality of care > nor guaranteed safety.
Well, I guess you’re right that there’s no guarantee of safety. I just think your odds are better if they also know where all of your parts are located. > Putting a code of approval on medicine alone as > a superior treatment is a very dangerous suggestion to make by anyone.
I guess when modern medicine stops resulting in better health and longevity I’ll buy this. > …You should be asking, > what is the success rate for psoriasis/PA patients with constant pain > that could benefit from the use of acupuncture treatments?
Ok. What are the success rates for psoriasis/PA patients with constant pain that could benefit from the use of acupuncture treatments? > Quackwatch
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