psoriasis
Question:
does it make you hair fall out?
Response:
>does it make you hair fall out?
no. any other questions?
Response:
><BR> ></FONT><FONT SIZE=3 PTSIZE=10>does it make you hair fall out?
The derm’s say no, but I have lost hair when the scalp P is very bad and my mother who has P lost quite a bit of hair and it has not grown back as yet. So, in my experience the answer is yes.
Response:
Only if you pick too much..
– Hide quoted text — Show quoted text ->does it make you hair fall out?
Response:
>are there any chat rooms for people dealing with psoriasis?
http://www.customforum.com/Psoriasischat/ and AOL has Town Square-Psoriasis and Psoriasis Message Board Hope this helps Good Luck Clara
Response:
are there any chat rooms for people dealing with psoriasis?
Response:
>are there any chat rooms for people dealing with psoriasis?
I believe someone here once mentioned "Town Square – Psoriasis" on aol. I’ve never been, so I can’t say if what it is (or if it still exists) – might be a place to start, though. -Linda
Response:
please send me any info on psoriasis. my parents suffer from this disease and have had no luck with medicine or doctors
Response:
You might want to try the National Psoriasis Foundation non-profit organization 6600 S.W. 92 nd Avenue , Suite 300 Portland, Oregon 97223-7195 Web site: http://www.psoriasis.org Steve
Response:
> Hi gang, > I went to a major health store the other day. I told them that I > have psoriasis and they told me I should be taking antioxidants, and my > essential fatty acids. One girl even mentioned Golden Seal??? <snip>
Things you must do per health food stores to get rid of toxins, fungi, etc causing P are the P versions of urban legends. Since these don’t cause the P (although health food stores across America are sure they know what does), they’re unlikely to cure it. OTOH if stress triggers yours, doing things like this that you happen to believe are beneficial *might* alleviate it some because you will have reduced your stress over it. > It > seems that every one you run into has something that will SURELY help > you.You got it!
-Kim
Response:
– Hide quoted text — Show quoted text -> Hi gang, > I went to a major health store the other day. I told them that I > have psoriasis and they told me I should be taking antioxidants, and my > essential fatty acids. One girl even mentioned Golden Seal??? She said > it cleanses the blood of toxins? I haven’t heard of this before, and I > know nothing about this stuff. Can anyone tell me > 1) if this is true? AND 2) would this help P? > I am already taking my antioxidants, colon cleansing, and Naproxen for > my Plantar Fasciitis. My clearing patches are still the same, > unfortunately. I think I will have to change my eating habits now. It > seems that every one you run into has something that will SURELY help > you. > Any help is greatly appreciated, > Judy
As a herbal health nut I can tell you that anti-oxidants will only do you good. Grapeseed extract is the most powerful anti-oxidant I’ve seen and will help at the cellular level. Golden Seal was used externally by native americans for skin conditions. It has immune building properties and does help eliminate toxins. It’s not to be taken by people with low blood sugar or pregnant women. It is a good one to take for anyone with skin conditions. I’m still telling people about Una de Gato just because I know of someone who is having success with it, but Golden Seal is certainly worth a shot if nothing else is working for you. Please remember that herbal supplements are not overnight cures. All they do is give the body specific nutrition so the body will gain strength in weak areas and do what it’s supposed to do. You need to take the products for at least three months to be able to tell anything. You’re body should kick in within that amount of time. Don’t be surprised if you feel worse before you feel better just because many herbs help expel toxins. It’s good to get rid of the toxins, so keep it up if you can handle it. A colon cleanse is a GREAT way to rid toxins. –becky
Response:
Hi gang, I went to a major health store the other day. I told them that I have psoriasis and they told me I should be taking antioxidants, and my essential fatty acids. One girl even mentioned Golden Seal??? She said it cleanses the blood of toxins? I haven’t heard of this before, and I know nothing about this stuff. Can anyone tell me 1) if this is true? AND 2) would this help P? I am already taking my antioxidants, colon cleansing, and Naproxen for my Plantar Fasciitis. My clearing patches are still the same, unfortunately. I think I will have to change my eating habits now. It seems that every one you run into has something that will SURELY help you. Any help is greatly appreciated, Judy
Response:
When I see or hear the "catch phrase" "CLEANSES THE (WHAT EVER) OF TOXINS" a red flag goes up! That is the catch phrase of the 90’s! and the people who use to are usually selling you a bill of goods! I have found that, if you really check into it, most items in health food stores and in those stores that sell body building products are at best useless and some are even dangerous. Don’t be suckered by sales hype! Research products yourself using scientific data.Tigger – Hide quoted text — Show quoted text – >Hi gang, > I went to a major health store the other day. I told them that I >have psoriasis and they told me I should be taking antioxidants, and my >essential fatty acids. One girl even mentioned Golden Seal??? She said >it cleanses the blood of toxins? I haven’t heard of this before, and I >know nothing about this stuff. Can anyone tell me >1) if this is true? AND 2) would this help P? >I am already taking my antioxidants, colon cleansing, and Naproxen for >my Plantar Fasciitis. My clearing patches are still the same, >unfortunately. I think I will have to change my eating habits now. It >seems that every one you run into has something that will SURELY help >you. >Any help is greatly appreciated, >Judy
Response:
i just got a new product. it works the same as skin cap and is clearing my skin up (tank god) its called zn pyrithione/clobetasol spray. it does contain a steroid. you can only get it by your dr.it is formulated by clark & palin drugs in bristal tn. phone # 800 263-8890. hope it works for you. GroverMike
Response:
Thanks for the info Mike, BUT NOOOO!!!! THANKS!!!!!!! – Hide quoted text — Show quoted text – > i just got a new product. it works the same as skin cap and is clearing my skin > up (tank god) its called zn pyrithione/clobetasol spray. it does contain a > steroid. you can only get it by your dr.it is formulated by clark & palin drugs > in bristal tn. phone # 800 263-8890. hope it works for you. GroverMike
Response:
Hi Mike – Glad you’ve got something that works for you. But this stuff ain’t hairspray. You can’t just squirt it on twice a day and go on about your life. You need to use it shrewdly, and you probably only get one chance. The active ingredient, clobetasol, is still a fairly powerful steroid. If you work it too hard, it’ll wear out ("tachyphylaxis", they call it), then you’ll rebound. Talk to your doc about how to not have that happen. I’m pretty much a bystander on topical steroids, because they mostly don’t work on me in the first place. But from what I’ve picked up around this news group, you need to be using it intermittently, maybe alternating it with another steroid of a different family or with a different treatment type altogether. Anybody who’s got a good handle on this, speak up. Good luck, Mike. If you play your cards right, this stuff could keep you going for years and years . . . - Rick BTW: For anybody who hasn’t gotten the word, any compounding pharm can make this up for you, with a prescription. But it’s just clobetasol in a different delivery vehicle.
– Hide quoted text — Show quoted text ->i just got a new product. it works the same as skin cap and is clearing my skin >up (tank god) its called zn pyrithione/clobetasol spray. it does contain a >steroid. you can only get it by your dr.it is formulated by clark & palin drugs >in bristal tn. phone # 800 263-8890. hope it works for you. GroverMike
Response:
Hi, Hong… everyone else’s advice is right on, and I’d start with the National Psoriasis Foundation in particular ( http://www.psoriasis.org/ ) But I thought you might also like to visit the following web site: http://w1.2380.telia.com/~u238000263/flaker/docs/index.html This is the site of Aase Marit, a wonderful young lady in Norway who is now 30 and has grown up with psoriasis (and psoriatic arthritis and EDS). She has a lot of solid information on her site, as well as some things of particular interest to children. Another site you AND your daughter might enjoy is: http://members.aol.com/tintabyrd3/ally3.html This is the home page of another young lady, also 8 years old, who has had psoriasis for years. Her page is specifically for kids with psoriasis, and has lots of useful links, too. She enjoys e-mail from other kids with psoriasis, too. Hope this helps! Best regards, LadyAndy2
Response:
writes: >Hi everyone, >My daughter, a Chinese at age of 8 years, has psoriasis for about 3 >years. She has plague psoriasis on her face, scalp, trunk, arms and >lags. I urgently want to know what kinds of treatment can be used for >her and how to control the problems caused by psoriasis. All suggestions >and experiences are appreciated. >Thank you in advance. >Hong
take a peek at www.psoriasis.org (note the .ORG) it is full of really GREAT information DenverD — CAUTION: All addresses are anti-spam spoofs. Don’t mail posts, I’ll see’em here.
Response:
Martin, how far do you want my boot sticking out of you ass? 470K takes a rediculous amount of time to download! ‘Tohician Noni’ better work dammit! – Hide quoted text — Show quoted text – >Did you even heard about Tahitian Noni Juice and Skin supplement ? >I Know some people who have been taking the Tahitian Noni Skin Supplement >for their psoriasis and it helped them a lot. If you want more info or you >want to try this product, just let me know.
Response:
Hi everyone, My daughter, a Chinese at age of 8 years, has psoriasis for about 3 years. She has plague psoriasis on her face, scalp, trunk, arms and lags. I urgently want to know what kinds of treatment can be used for her and how to control the problems caused by psoriasis. All suggestions and experiences are appreciated. Thank you in advance. Hong
Response:
Does keeping wrapped so air cannot get to infected area help? What is the normal amount of spreading to occur? month /yr Will tar coal work? Mine will not itch if covered with over the counter antibacterial ointment and wrapped tight.
Response:
first of all, it’s not an infection! second, do not go using antibiotics all the time unless you are cut or do have an infection. The strongest bacteria normally on your skin will form a resistant strain and then you’ll have no meds that work for infections when you do need them. some people say that occlusion therapy (making an airtight seal) helps, but if you must use an ointment to help seal it, use vaseline, not an OTC antibiotic. – Hide quoted text — Show quoted text – > Does keeping wrapped so air cannot get to infected area help? > What is the normal amount of spreading to occur? month /yr > Will tar coal work? > Mine will not itch if covered with over the counter antibacterial ointment > and wrapped tight.
Response:
Hong, Please go the National Psoriasis Foundation, (NPF) at http://www.psoriasis.org They have a wonderful children’s section and you of course can email, call and read all the information on the site. Please contact them, as there are, as you know more emotional problems that can be related to this disease than life-threatening. Scott
Response:
>Hi everyone, >My daughter, a Chinese at age of 8 years, has psoriasis for about 3 >years. She has plague psoriasis on her face, scalp, trunk, arms and >lags. I urgently want to know what kinds of treatment can be used for >her and how to control the problems caused by psoriasis. All suggestions >and experiences are appreciated. >Thank you in advance.
There are lots and lots of treatments out there, none of them effective for everyone and with varying degrees of risk associated with them. I’d suggest you take a look at the National Psoriasis Foundation website at http://www.psoriasis.org which gives a good outline of the conventional therapies out there, to get an overview of those. In addition, there have been many alternative therapies posted about here on the ng, ranging from dietary adjustments to chinese traditional medicine. The ng has a searchable archive at http://www.pinch.com You’ll also find anecdotal evidence there on the use of some of the therapies discussed at the NPF site, which can be helpful. There has also been ng discussion on P in children, which has significance in things like the difference in risk on treating children (with bones, etc still developing) over adults. The NPF site also has a section discussing this along with pamphlets you can order from them about that. None of which gives you a direct or simple answer, I realize, but what you really need to do is familiarize yourself with what’s out there then take her to see a dermatologist who specializes in P (not all derms do and it really does make a difference) to see about starting her on one of the treatments. The alternative is to try some of the alternative therapies suggested, but you should still consider risk there in things like mega vitamin doses or dramatic dietary changes, since children have different needs/tolerences than adults. I’d really suggest seeing the derm, myself. The problem with P is that there is no single answer for how to deal with it, and for all of us it’s a matter of sifting through the variety of what’s out there to see what works for us that we can tolerate using. Best of luck -Kim "From far, from eve and morning And yon twelve winded sky The stuff of life to knit me Blew hither, here am I" -A. E. Housman
Response:
>Removing local irritants, improving hygiene > and rinsing requently with a
saline solution > can relieve oral discomfort. One of my first derms suggested to me that better hygiene was the solution to my p and I was very insulted. As the years have passed, I have found that soaking in various solutions, epsom salts or tar baths, does help the scale. These things are not what I would call improved hygiene, in fact the coal tar is downright dirty! So FWIW I just thought I’d add, nobody here is accusing you of bad breath or bad oral hygiene. And I don’t think they are suggesting that not brushing your teeth causes p, either. So why can’t they (the NPF that is, not Linda) just say remove the local irritants and rinse frequently. What does the hygiene reference add, besides insult and blame? Amy
Response:
> So FWIW I just thought I’d add, nobody here is accusing you of bad breath or > bad oral hygiene. And I don’t think they are suggesting that not brushing your > teeth causes p, either. So why can’t they (the NPF that is, not Linda) just > say remove the local irritants and rinse frequently. What does the hygiene > reference add, besides insult and blame?
You know, Amy, people are so prone to the worst when it comes to dealing with psoriasis. It’s amazing how thoughtful humans interact with one another. — this goes out to Nick and Marsha. Many dermatologists believe (and the NPF has some studies agreeing with) that psoriasis flares up because that certain person’s body is having a massively adverse effect with some fungi/bacteria. The ulcers could possibly be created by the fact that your mouth is reacting severely to otherwise normal levels of bacteria. I also get mouth ulcers from time to time. If you can find it, there is a mouth wash powder called "Vince" which supposedly oxygenates and heals damaged areas of the mouth (such as ulcers). I find that applying the powder directly to an ulcer stings for a split second but provides relief from pain for a couple hours. Washing with Vince at night helps get rid of the ulcer in about two days. — BRADS A3 Diagnostic Kernel Lead Engineer PEI Electronics, Inc. Cell: 256-658-2667 Fax: 256-828-2667
Response:
Is there anyone out there who can help me with information of psoriasis of the tongue? I just had two places biopsied from my tongue and am suppose to find out tomorrow the outcome. The oral surgeon said it appears to be psoriasis. I have light red spots with a burning sensation. I have a few spots coming up on my head and they did a biopsy on my face. None of my spots ever have itching and the spots on my face just appear to be like an old scar. The place on my face is not raised or reddened. Will find out for sure tomorrow but if anyone has any information I would sure appreciate it.
Response:
I don’t think it’s P, though I do get a lot of ulcers ! Anyone out there any thoughts as to there being a connection between P and mouth ulcers ? I do find that if I change my tooth brush when the bristles start to bend a little, about 4-6 weeks, I don’t get as many ulcers ! Nick — Sorry folks, I’m being spammed at yahoo 
Anyone should be able to work out where to reply too ! nrw7 yahoo.com
Response:
>Is there anyone out there who can help me with information of psoriasis of >the tongue?
Hi Marsha – I guess at this point you’ve found out the results of your biopsies – what did they say? As far as info on P of the tongue goes – there isn’t much out there. I’ve been looking through all kinds of medical books lately (and keeping this in the back of my mind) and haven’t found anything. There is a mention in an NPF brochure though. Here’s what it says: "For a very small number of people, psoriasis lesions appear orally — on the gums, the tongue, or inside the cheek — or on the lips. The lesions are usually white to gray. One study showed that only about two percent of the people with psoriasis have lip psoriasis, and one percent have psoriasis on the inside of the cheek or on the tongue. For the most part, psoriasis treatments for the mouth involve the use of of topical steroids that have been designed to treat moist areas. These may provide temporary relief. Removing local irritants, improving hygiene and rinsing requently with a saline solution can relieve oral discomfort. Low potency steroids such as hydrocortisone 1% ointment may be useful in treating psoriasis on the lips." Hope that helps some. Take care. -Linda
Response:
information about a drug used to treat severe psoriasis called methrotrexate
Response:
> information about a drug used to treat severe psoriasis called methrotrexate
Hi Lisa; Methotrexate was developed to fight cancer, but people with RA noticed that it helped their joints a lot. Then people using for RA (at a lower dose than for cancer) noticed that it helped their psoriasis. Methotrexate has side effects that would keep me from using it just for psoriasis unless it was really bad. (I used it for PA, since my joints were being destroyed, therefore worth the risk). The worst side effect is that it attacks your liver. The side effects can be reduced by taking folic acid and Milk Thistle. A better choice might be Arava. It seems to be replacing Methotrexate as the medicine of choice for RA, and it also helps psoriasis better than methotrexate. When I started taking Arava, I tapered off the Methotrexate. While taking both, ALL my psoriasis went away! But they both attack, your liver, so again, I would not recommend it unless you are in really bad shape. People have died from taking either Methotrexate and/or Arava (mostly liver failure), but IF your doc monitors you carefully, one by itself is pretty safe. Depends on how much you trust your Doc! I would look for a Doc that has lots of experience with Methotrexate and Arava. Hang in there. There are supposed to be some good psoriasis drugs in development. Ray
Response:
- Hide quoted text — Show quoted text – > wan’t to know more about this problem.
Response:
Herbal Aloe Gel Herbalife. What your opinion? * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!
Response:
>By all means try the alternative treatments… but I’d strongly suggest >(tho’ make up your own mind) that you try the safer traditional >treatments before jumping to alternative treatments. Wait… that >doesn’t sound right… I don’t mean that the traditional treatments are >safer than the alternative (in fact my grandmother’s life was >significantly shortened by MTX — a traditional treatment) what I mean >to say is try the traditional treatments that are relatively safe >(anthralin, mild steroids, Soriatane and some of the ‘lighter’ systemic >treatments) then when and if they fail try the Tea Tree oils (yuck! that >stuff stinks) and the other herbals.
Can I try it another way, Kevin? *All* treatments, whether mainstream or alternative, have benefits and risks. Before trying anything that can affect health, a person should learn as much as possible about that treatment from reliable sources. If the risk is acceptable, go ahead and try it. If the benefits don’t sound so good, don’t. About the word ‘reliable’, there are many things to watch out for. No matter whether your advice comes from an MD or a DC, an ND or a PhD, a master herbalist or a registered dietician, everyone can make mistakes. Anyone who uses the words ‘cure’ or ‘permanent’ when describing the benefits of a current psoriasis therapy is yanking your chain. Anyone who uses the words ‘no side effects’ when talking about the risks is to be considered dangerous. Anytime someone refuses to divulge the ingredients in a medication, stay well away from it. >It stands to reason, tho, that treatments considered ‘alternative’ right >now will be considered traditional at some point in the future (it >really couldn’t be any other way).
Actually, Kevin, yes, it could. *Everyone* began with herbalism, for example. We’ve moved from chewing willow bark to popping aspirin. Now, we seem to be in the middle of a trend back towards herbalism. Many alternative treatments are very old (acupuncture, for example). Age, unfortunately, has little to do with worth, scientifically and medically. Many were left behind when better and/or safer alternatives to *them* came along. Colloidal silver was dropped in favor of sulfa drugs, which were dropped in favor of penicillin, then modern antibiotics. Colloidal silver is, for some reason, making a comeback, though. Compare and contrast Mesmer’s 18th-century "animal magnetism" and today’s ‘magnetotherapies’: http://www.skepdic.com/mesmer.html – Dave W. http://members.aol.com/psorsite/
Response:
wan’t to know more about this problem.
Response:
Gerald, If you’re looking for detailed information about Psoriasis in general, there is wealth of information at www.psoriasis.org. That would be a good starting point. Janet – Hide quoted text — Show quoted text -> wan’t to know more about this problem.
Response:
- Hide quoted text — Show quoted text – > wan’t to know more about this problem.
Response:
Hello Gerald, By all means try the alternative treatments… but I’d strongly suggest (tho’ make up your own mind) that you try the safer traditional treatments before jumping to alternative treatments. Wait… that doesn’t sound right… I don’t mean that the traditional treatments are safer than the alternative (in fact my grandmother’s life was significantly shortened by MTX — a traditional treatment) what I mean to say is try the traditional treatments that are relatively safe (anthralin, mild steroids, Soriatane and some of the ‘lighter’ systemic treatments) then when and if they fail try the Tea Tree oils (yuck! that stuff stinks) and the other herbals. Don’t forget tar baths and UV (A or B). Then if you’re really at the end of your wits, I’d go to the potent stuff like MTX or the imunosuppressants and the other dangerous stuff. (Get all yer drinking done before you try any of that stuff cuz you’ll have to lay off the booze while you do that stuff.) Speaking of booze, many many psoriasis sufferers find that booze, even in small amounts, will cause their P to flair and remain unstable — this is very much my personal experience. It stands to reason, tho, that treatments considered ‘alternative’ right now will be considered traditional at some point in the future (it really couldn’t be any other way). The link (below) suggested by Fred talks about a growth of toxins in the bowel caused by yeast… which is interesting to read but ask youself the question, what else is the bowel for if it is not to handle toxins? I mean <geesh!> the stuff that passes through your bowel would wreak havoc if it were to pass through any other part of your body. (If you wouldn’t take it as a suppliment, bake it into a cake, garnish your roast-of-lamb, or tofu-sish-ka-bob with it, or sprinkle it on your breakfast cereal — it’s a toxin to you.) Anyway, the connection between certain kinds of toxins in the bowel and psoriasis is not well established but there is a growing body of anecdotal evidence pointing toward that very thing. There is a similar body of *anecdotal* evidence pointing to liver involvement and there is an extablished connection (not anecdotal) between psoriasis and genetic inheritance (like me and Grandma). The NPF web site is a good starting point. As well, many of the ‘alternative’ pages are very good — some of them will just give you a chuckle… but I’m of the opinion that’s therapeutic <grin>. The link listed below "Alternative Treatments for Psoriasis" says, "Also limit vitamin C intake to 1,000 mg per day and biotin intake to 50 mcg per day — both can exacerbate psoriasis in larger doses." I don’t even know what biotin is, but I know that I could not get my psoriasis under control (for nearly 20 years) until I started taking 3 grams (or more) of vitamin C each day; that’s 3000 mg. My point is simply that individual results will vary tremendously from one treatement program to another. (I don’t expect everyone would get better with my program but two of my friends with severe unresponsive psoriasis did respond very well to the vitamine regime I was using. One of them saw between 80 and 90% improvement in his condition in 8 weeks. He didn’t stick with the program for very long and he has rebounded quite badly. He says the vitamin C makes him "run". Ahem! perhaps he’s just ridding himself of toxins <grin>.) Anyway, I wish you success with whatever you try. Kevin. – Hide quoted text — Show quoted text -> I wan’t to know more about this problem. > Hi Gerald, > I just came across this, very informative. Lots of links to follow ( > in the box on > the right ) of special interest ( to me anyway ) under home treatments > ( in the box) scroll all the way down to Other helpful suggestions. > Also there are links at the bottom of each article. > Hope you find it as helpful as I did, Jean 
( using Freds’ machine > ) > Skin and Hair: Eczema & Psoriasis: Psoriasis: Topic Overview > also Skin and Hair: Eczema & Psoriasis: Alternative Treatments for > Psoriasis
Response:
> I wan’t to know more about this problem.
Hi Gerald, I just came across this, very informative. Lots of links to follow ( in the box on the right ) of special interest ( to me anyway ) under home treatments ( in the box) scroll all the way down to Other helpful suggestions. Also there are links at the bottom of each article. Hope you find it as helpful as I did, Jean ( using Freds’ machine ) Skin and Hair: Eczema & Psoriasis: Psoriasis: Topic Overview also Skin and Hair: Eczema & Psoriasis: Alternative Treatments for Psoriasis
Response:
> does anybody know a swiss product against psoriasis called FUMOR or > something similar ? > Actually we know the product is sold in Switzerland, but we do not know if > it is Swiss-made. > Pls answer asap, the problem is becoming serious. > Thanks in advance for your advice > Maria Turra
Sounds similar to Fumaderm a well known drug against recalcitrant P used a lot in Germany. If you’d like some more info about the esther of Fumaric acid you can e mail me. Oscar from Italy
Response:
does anybody know a swiss product against psoriasis called FUMOR or something similar ? Actually we know the product is sold in Switzerland, but we do not know if it is Swiss-made. Pls answer asap, the problem is becoming serious. Thanks in advance for your advice Maria Turra
Response:
> does anybody know a swiss product against psoriasis called FUMOR or > something similar ? > Actually we know the product is sold in Switzerland, but we do not know if > it is Swiss-made. > Pls answer asap, the problem is becoming serious. > Thanks in advance for your advice > Maria Turra
Maria, If your psoriasis problem is becoming "serious", you need to get serious about healing your body instead of just smearing on more stuff on your skin. The problem begins inside your body, not on the surface of your skin. You need to start giving your body what it needs to get better. You can find out what to do at www.psoriasiscure.net.
Response:
We may be able to offer some help with a new product pure olive oil soap The psoriasis and eczama society are doing features about this soap in there forthcoming magazines I have plenty of letters from people saying how beneficial this product has been to there skin complaints
Response:
said: >We may be able to offer some help with a new product >pure olive oil soap
I wonder how it would do for washing pasta. – Hide quoted text — Show quoted text ->The psoriasis and eczama society are doing features about this soap in >there forthcoming magazines >I have plenty of letters from people saying how beneficial this product has >been to there skin complaints
Response:
>Hi I went to see the dermatologist and I do have psoriasis >the medication I am on which I start taking on Friday is call >METHOBLASTIN >worried with the Information I have found on the net about the side >affects. and what does it do?
Okay, Methoblastin is an Australia-area brand name for methotrexate. Here’s a link to a post about it, from someone who’s been on methotrexate for quite some time: http://groups.google.com/groups?selm=20020217000856.05530.00000929%40… .aol.com >also can P skip a few generations as I know my parents and G.parents >an so on never had this nor non of my cousin etc etc.
The genetic basis for psoriasis isn’t fully understood yet. The inheritance patterns are complex, since it’s probable that more than one gene is involved. Could be you got one gene from your dad, and another from your mom, and put together they make psoriasis. Or, it could be that one of your parents had all the required genes, but they were never "triggered" into showing symptoms. – Dave W. http://members.aol.com/psorsite/
Response:
To my opinion it’s better to make an internet search for the side effects. — Gil Teva 20 Mekor Haim street Jerusalem 93465 Israel Tel: +972 2 6724273 Mobile: +972-54-948642
Response:
If you take it tell us the results. — Gil Teva 20 Mekor Haim street Jerusalem 93465 Israel Tel: +972 2 6724273 Mobile: +972-54-948642
Response:
Von, the questions you ask regarding the side effects of methoblastin should be address to your derm. My rule of thumb is, never take a drug until the prescribing physician answers all my questions regarding side effects or any other concern I may have. GOOD LUCK!!!!! DENNIS G
– Hide quoted text — Show quoted text -> Hi I went to see the dermatologist and I do have psoriasis > the medication I am on which I start taking on Friday is call > METHOBLASTIN > worried with the Information I have found on the net about the side > affects. > and what does it do? > also can P skip a few generations as I know my parents and G.parents > an so on never had this nor non of my cousin etc etc. > cheers > Von
Response:
Hi I went to see the dermatologist and I do have psoriasis the medication I am on which I start taking on Friday is call METHOBLASTIN worried with the Information I have found on the net about the side affects. and what does it do? also can P skip a few generations as I know my parents and G.parents an so on never had this nor non of my cousin etc etc. cheers Von
Response:
Hi, you mention becoming stomach sick with the mtx. I have been on mtx for nine years and it has controlled the ps to a degree. I found that taking the tablets made me very nauseous and it was all I could do to swallow them. Then I found out about folic acid. You don’t mention this so I assume you don’t take it. I started taking a 5mg tablet every day and the nausea disappeared. It was really amazing. You mention taking injections so I don’t know if the results would be the same, but ask your doctor anyway – nothing to lose. Mike – Hide quoted text — Show quoted text ->i hope i will remember where i found you to share with you again and see too >how you are all doing. Mtx injections put the initial whack at the sever >psoriasis but to tell you the truth after several years taking it, it is making >my stomach sick so i stopped several weeks ago but i see now it is becoming >active again. >be well and god bless youo. >florence
Response:
i have read with great love and identification concerning all of your messages. love , if you are fortunate to experience it, is the best and that includes the sexual part. having been widowed three years ago i am left alone with my psoriasis and a serious fungus. However, i have decided to take the bull by the horns and make a geographic move to a warm climate with an indoor pool, masseuse, gym, and hot tub. I am very overweight now but here in a big city i am limited what i can do. i take a lot of medicine, but i am greateful – at this moment i am walking. i hope i will remember where i found you to share with you again and see too how you are all doing. Mtx injections put the initial whack at the sever psoriasis but to tell you the truth after several years taking it, it is making my stomach sick so i stopped several weeks ago but i see now it is becoming active again. be well and god bless youo. florence
Response:
>I just found this group. Don’t know if I can access again, so would >appreciate
Shhh, don’t tell him the newsgroup rotates to a new hiding spot every night at midnite so that it can’t be easily found again. Shhhhhh!. > I just ordered the products from >Skin Tech, blue caps and internal pills,, any good?? Also spoke to Don Sipler >who seem a knowlegeable man who had P. and uses Folic Acid and other things >and >coal tar… Thurs. will hear of a Swiss Dr who has cured a prominent heart >surgeon’s wife,, no fake.. Anyone interrested E mail me. >Ive had it since age 15,, now 68… Great fun ins’t it??
Happy to be Alive
Response:
I just found this group. Don’t know if I can access again, so would appreciate Skin Tech, blue caps and internal pills,, any good?? Also spoke to Don Sipler who seem a knowlegeable man who had P. and uses Folic Acid and other things and coal tar… Thurs. will hear of a Swiss Dr who has cured a prominent heart surgeon’s wife,, no fake.. Anyone interrested E mail me. Ive had it since age 15,, now 68… Great fun ins’t it??
Response:
I have tried alot of ointments over the last six years ( psorcon, elocon , cormax and now dovonex) all work for a little while then stop working. Has anyone heard about laser surgery to remove this crap??
Response:
> I have tried alot of ointments over the last six years ( psorcon, elocon >, cormax and now dovonex) all work for a little while then stop working. >Has anyone heard about laser surgery to remove this crap??
Heard it was tried, but by the time it works, you have scars instead of p where p used to be, and p still shows up again in new places. J.
Response:
no laser news here what I understand is that it all stems from internal systems out of balance that manifest in the skin, therefore a cosmetic alteration of the skin would be ineffectual
Response:
Just a thought – what is this supposed to look like? I have dry and heavily-lined skin apparently due to eczema, especially since it was well below freezing last night when I came home (long walk to try to stop thinking…) and the backs of my legs sting and are reddened. But my nails all have vertical lines on them, on my thumb nails you can feel these lines and on the thumb nail of one hand there is a distinct ridge about half-way up it. Am going to see doctor sometime nest week to see about asthma, so should I mention it then? The lines have been there ever since I can remember, but this ridge is new. And yes, the below-freezing weather is playing merry hell with my arthritis. As is the new physio, who seems disconcerted by the fact that if I push my shoulder back, pull in my stomach muscles AND tuck in my bottom, I develop a very strange walk and finish by falling over….:-) My Mother’s comment is that when she made me she obviously used substandard adhesive… Purple People-Eater of/at St Hilda’s College, Oxford. "zzub,zzub. MIAAAAAAAAAOW. Crunch….munch."
Response:
>Just a thought – what is this supposed to look like? <snip> >the backs of my legs sting and are reddened. But my nails >all have vertical lines on them, on my thumb nails you can feel these >lines and on the thumb nail of one hand there is a distinct ridge about >half-way up it.
<snipped> Hi… frankly it doesn’t sound like psoriasis to me, although the only way to really tell is to have a qualified doctor look at it. There are several different kinds of psoriasis, the most common being plaque psoriasis (which I have). It consists of raised areas of skin that have whitish flakes of "extra" skin on top (because the skin rate of production is faulty and turns over too fast… just makin’ skin like crazy). If the scales/flakes are scraped or soaked off, the skin underneath is red and can sometimes crack or bleed. The nail part consists of areas of pits or dark spots in the nail, with the nail itself lifting off the bed and growing irregularly. The ridges you describe sound more like either normal fluctuations in the availability of vitamins and/or minerals, which can affect the growth of the nails, or might be the result of some minor injury to the quick, the growing area by the cuticle. I’d show the doc… they can never have too much information! (let the doc decide what it is without prejudicing him with opinion… and whether or not it is important. You never know!) For more detailed photos of psoriasis (ick… hate to look at the photos)… see http://www.psoriasis.org/ (the National Psoriasis Foundation) Hope it’s nothing… Best regards,
Response:
Who Knows! I have psoriasis – which was incorrectly diagnosed for nearly twenty years before it was caught. I think the signs and symptoms can be very individual. What twigged the right diagnosis was a supreme outbreak of psoriasis on my scalp two years ago. Prior to this I was diagnosed with excema and had small patches of red, dry and irritated skin. Still have that on my legs. My nails are ridged and cuticles are sensitive. I get bright red rashes in large patches all over. Flakey skin in the ears (a symptom of psoriasis of the scalp). Deb
Response:
>Who Knows! I have psoriasis – which was incorrectly diagnosed for >nearly twenty years before it was caught. I think the signs and >symptoms can be very individual. What twigged the right diagnosis was a >supreme outbreak of psoriasis on my scalp two years ago. Prior to this >I was diagnosed with excema and had small patches of red, dry and >irritated skin. Still have that on my legs. My nails are ridged and >cuticles are sensitive. I get bright red rashes in large patches all >over. Flakey skin in the ears (a symptom of psoriasis of the scalp). >Deb
Now this is interesting…My Rheumatologist though that I may have had psoriasis when I first began visiting him. I remember being asked if I had a rash anywhere, and if my back hurt at all. Even know (five years later, I’m diagnosed and being treated as having RA) when I see my doc he asks if I have any back pains, and searches my hairline for any signs of a rash! I’ve heard of people being diagnosed as having psoriasis,, on the basis of having lower back pains, even though there is no rash present…. Any comments? (It’s been raining for two days straight…argh…but I managed to get myself moving, even went curling for the first time ever yesterday. Now that was an accomplishment!) Thanks for any info! Nicole
Response:
I’se seen hypnosis do wonders for psoriasis… (as well as many other things)
Response:
I have had psoriasis for 20 years now. I have just about tried it all. the expensive corticosteriods work somewhat but have side effects like thinning of the skin. I tried methotrexate for awhile but had liver problems. After years of not using coal tar I switched off everything but a bath oil with coal tar called Balnetar Oil ( made by the makers of alpha keri) 3 capfuls and a big glob of baby oil and soak for 20 minutes three times a week…… my skin is clearer than its been in ten years. In combo with this I go out in the sun as much as possible. Wait 24 hours after using the Balnetar though or you could get seriously sunburned which will worsen psoriasis. For some reason tanning beds don’t work for me. Also psoriasis can get worse after being sick, (colds or flu) so do everything you can to stay healthy! Everyone is individual. And just because your brother has it does not mean you will get it. It is thought to have a family connection but not a strong one. One thing to be concerned about for your brother is that a small percentage of people with psoriasis will develop psoriatic arthritis (10%). It is not pleasant. He should discuss this with his dermatologist. I’m all for alternative meds. I use many methods in my own health care but the closest thing to natural with psoriasis is the coal tar meds. Good luck to your brother!
Response:
I am researching various treatments for psoriasis, mainly herbal etc Anyone got any ideas/suggestions etc. I have searched the net, but most references are medical drug based Thanks Robert Fraser
Response:
Dear Robert, We have successfully used Essiac for psoriasis. We supplied ti to a psychiatrist in Perth and she took it initally to satisfy hwerseklf that it was not harmful, before providing it to a patient. She rang us two weeks after starting using the Essiac and told us that the psoriasis on her leg (which we were not aware she was suffering from as she wore a long dress when we met), was disappearing down her leg at the rate of 1 onch per day. Essiac is just 4 herbs, and is completely harmless. It has been used for over 70 years for various illnesses. Max
Response:
My brother had psoriasis for about 10 years. He tried everytihng. In a desesperate moment he recall all the effords that he made comming out to the following conclusion. 1.- Vaseline (the babies version) is great to make the skin fall. 2.- Oxipor Psoriasis Lotion (of the counter product) White hall labs NY 10017 is good to stop the skin from growing so fast. 3.- Dermatovate Clobetasol by Glaxo (He gets it in Mexico but I am sure you can get it here in the US) is great to make the skin soft. Every time he used one of the above solutions he got partial results. He mixed them and controled psoriasis in about two weeks. The mixture was by feeling. he is that way. He mixed first by adding the oxipor solution to the vaseline (it is liquid) making sure that it was a creamy solution all the time. When it got to the point that began to loose the creamy solution he added about half an inch of the Dermatovate tube. Let me know about the results, he would like to know. Francisco J. Enriquez Let me know about the results, he would like to know. Francisco J. Enriquez Francisco J. Enr
Related Posts