Going to derm tomorrow…
Question:
I’m sorry you have this on your face. I can imagine your embarrassment… however, when you have this on your hands… onlookers can still SEE it plus you can’t DO anything…. housework bathing/washing hair brushing teeth getting dressed getting kids dressed DRIVING writing typing Also, having it on your hands is a direct threat to your working/ability to earn money, that’s why many people who have it on their hands qualify for disability. Anyway, goodluck with your condition. I’m glad you found a good derm. Bekki
Response:
Dang. I forgot to tell you…. The greasy stuff is triamcinolone acetonide ointment. I used the cream version of this stuff with no success. He said the ointment was better – but I don’t look for it to do much. Bekki
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I know what you mean about incompetent derm doctors. I have Sebbhorea on my face. I have had it for 10 years. Through the years some spots have kind of cleared up while other areas have started to flare. As with P. it comes and goes. Be thankful you have it on your hands and not your face. As far as doctors, the first doctor I went to was a total jerk…he looked at me for about 30 seconds and just prescribed Tetrocyclene…which did nothing. The second doctor I went to was MUCH better. Took time to explain what could be done and reccommended certain medications that helped. I have taken cortisone shots and it works really well with Seb. but doc only reccommends them every 6mos. good luck shane
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> J. > My hands/fingers have several deep cracks in them and since I’ve let it go for > so long, it’s quite obvious they’re infected. That’s why he prescribed the > antibiotic. (That happens a lot to me – and the infection is about as bad as > the P itself.)
My hands respond well to a tar ointment. It’s something that my Derm prescribed and the pharmacist compounded. The label on the ointment reads "C-TAC 0.1% /LCD 10%". It cost $16.04 for enough to last me a couple of months. I smear the stuff on my fingers and hands and put on cotton gloves and wear them to bed at night. I see good results in a few days and am usually totally clear in a few weeks. I haven’t tried the same treatment with MG217 but it may work as well, and is over-the-counter. I hope this helps, SteveD – Hide quoted text — Show quoted text -> We discussed the idea of taking prednisone for too long. He said he respected > my concern but when the P gets as bad as mine is, it’s unhealthy to not use > something that will work fast. That’s why he mentioned the injections. He said > it’s less harmful to the body that way – which I kind of doubt. [snip] > Bekki
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J. My hands/fingers have several deep cracks in them and since I’ve let it go for so long, it’s quite obvious they’re infected. That’s why he prescribed the antibiotic. (That happens a lot to me – and the infection is about as bad as the P itself.) We discussed the idea of taking prednisone for too long. He said he respected my concern but when the P gets as bad as mine is, it’s unhealthy to not use something that will work fast. That’s why he mentioned the injections. He said it’s less harmful to the body that way – which I kind of doubt. On a scale of 1 to 10, 10 being the worst, my hands are probably at a 6 or 7. They’re in worse shape now than they’ve been in a long time. I don’t go to a doc unless it gets really bad because I don’t have medical insurance and have to pay the office visit and all the meds out of pocket. He jumped on me for letting them get this bad… but what’s the sense in going when I can live with it? Ya know? It’s been about 6 months since I’ve taken prednisone. I had a prescription leftover in my cabinet and have made a personal choice to NOT take it all these months because I’ve read such bad things about it. But when my hands/fingers get THIS bad, I’ll take just about anything. I’m sure you know the feeling well. I was actually a little relieved when he said he was going to give me prednisone. I have to take 30 mg for 7 days, then 20 mg for 7 days, then 10 mg for 5 days and then I go back. Fall was bad for me last year starting in October. I figure that’s where I’m heading now… like it got last fall. Did you say you did or didn’t try the Ultravate? Bekki
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>Yeah, thanks. >He said it was something or other… some kind of eczema – and I said, "hmm. I >thought it was pustular P" and he said, "it doesn’t really matter – it’s all >treated the same way." >Gee… THAT was reassuring. NOT. >Anyway, prednisone, keflex, and some greasy ointment.blahblahblah.
Sounds like he’s all over the map. While I have heard of it being prescribed more for unknown conditions, using prednisone for psoriasis is not really recommended, especially beyond a couple of weeks. It often *works* short-term, but the psoriasis returns, and you are even at risk for "rebound" where it comes back worse than it started. Keflex is an antibiotic. I wonder if he prescribed it for the primary condition or because he thought there might be secondary infections. OTOH, antibiotic treatment for psoriasis is sometimes tried, and Keflex is often named for that. With the prednisone, … hmmm. (and watch out for your intestinal flora while you’re on the stuff, I tried another antibiotic for psoriasis early this year, and I suspect some problems I had afterwards may have been related along those lines). >So, in a week I’ll be in amazing shape. And then it’ll come back. He said it >was chronic and all we could really do is keep it from getting as bad as it is >right now. He said that I might be better off getting cortisone shots – it’s >not as hard on the body. But for now, I’m taking prednisone pills. >He mentioned he wanted to give me ultravate but said it was expensive so I >opted for a less expensive ointment for now.
What’s the (greasy) one you did get? >Anyone tried Ultravate… or cortisone shots? How’d you do?
Tried the shots early on. One shot cleared one spot. OK. Second shot cleared nothing. Third shot cleared nothing. No more shots. If you have more than X spots, it’s probably not a good idea anyway. It turns out for me and a few others that the cortisones don’t work very well for us, even in the short term. For some lucky ones it works great. Most others probably fall in-between. — The other question is how bad shape you’re really in. Again, I’ve heard of prednisone used short-term to get on top of a bad flare. It’s an interesting mix he prescribed. Let’s hope for the best! J.
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I’m going to a derm tomorrow. Since I have no health insurance, my derm visits are few and far between. I wonder what WONDERFUL and AMAZING things he’ll have to say. (Yes, I’m being sarcastic.) I went to this guy when my hands first broke out. He gave me Psorcon, prednisone, and told me they would clear me up but if it came back, we’d need to look at what might be causing it. It did clear it up but it came right back – and I didn’t go back. When I decided to go to a derm about 5 months ago, the first one was on vacation so I went to another one. That guy was convinced I had some deadly disease. He tested me for HIV, lupus, etc…. when all that came back okay, he said he wanted to do a chest x-ray and test me for tuberculosis. At that point, I came to the conclusion that he was pretty much a moron. I haven’t been to anymore derms since then. ( I have no symptoms of any of these diseases.) I’ve never been officially diagnosed with P. The moron doc said, "uh.. erm…. it looks like a kind of psoriasis" and the inflection in his voice at the end of the statement led me to believe he had no clue. It was more like a question than a declaration. Anyway, maybe the doc I’m going to tomorrow can enlighten me. Wish me luck. Bekki
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>Anyway, maybe the doc I’m going to tomorrow can enlighten >me. Wish me luck.
Luck. J.
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Yeah, thanks. He said it was something or other… some kind of eczema – and I said, "hmm. I thought it was pustular P" and he said, "it doesn’t really matter – it’s all treated the same way." Gee… THAT was reassuring. NOT. Anyway, prednisone, keflex, and some greasy ointment.blahblahblah. So, in a week I’ll be in amazing shape. And then it’ll come back. He said it was chronic and all we could really do is keep it from getting as bad as it is right now. He said that I might be better off getting cortisone shots – it’s not as hard on the body. But for now, I’m taking prednisone pills. He mentioned he wanted to give me ultravate but said it was expensive so I opted for a less expensive ointment for now. Anyone tried Ultravate… or cortisone shots? How’d you do? Bekki
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